Mason's Journey

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Wednesday, September 14

Born a Packers fan! Watching pre-game with me. ~Derek

Labels: packers

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Mason and his Mama: Waukesha, Wisconsin; Mason was born 8.26.10 and has been lighting up our every waking moment since. He was diagnosed with Cystic Fibrosis, a chronic life long, life shorting, fatal genetic disease, at just 3 weeks of age. It is an invisible disease that you can't see from the outside, but one that is clogging up mostly his digestive system (making it hard to digest and absorb nutrients) and respiratory system (making him fight for every breath), but also other organs. There is no cure as of yet, but we are hopeful for that to happen in his lifetime. CF is only one part of him. We have high hopes and dreams that he will become anything he sets his heart to.

CF Gene Mutations: 3659delC & S1251N

Clinic: Children's Hospital of Wisconsin (Milwaukee)

Albuterol Inhaler 2puffs before each Vest treatment

4 Creon 6000 capsules before each meal/snack mixed with applesauce x4/day

Hypertonic Saline (nebulized) 1 vial in AM & PM

Omeprazole 5mg daily in AM 30 min before Breakfast
Pulmozyme (nebulized) 1vial in PM
The Vest 20 min in AM & PM

Vitamax vitamins 1 ml once a day

Extra's of oil, salt, butter, pediasure for extra calories/fat

Nathan's Fight

Nutritional failure, it's time for a G-tube
9 years ago
Run, Sickboy, Run - Cystic Fibrosis and Exercise

My New Treatment: O to the 2
9 years ago
Not so bright & Shiny

This moment...
10 years ago
Skye is the limit

Inilah manfaat super dari daun salam
10 years ago
Steece's Pieces

Kellogg's Cereal in a Cup- a Busy Mom's Dream!
11 years ago
The Dekan Family

Monsters University (2013)
11 years ago
The Herbst Family

Family Vacation and May Updates
11 years ago
The Groettum Family

An update and a short vent.
12 years ago
The Steighner Family

Anyone there????
12 years ago
The Navarre Family

With no home!
13 years ago
Radek Loves to Breathe

Hospital Time Againnnnn
13 years ago
The Blaha Family

Still No Baby
14 years ago
The Molle Family

Grandma Betty
14 years ago
The Brenton Family

2012 Brings Change...
14 years ago
The Hughes Family

Tap, tap, tap....
14 years ago
Ummy's Blog