We wanted to share this video that was created in loving memory of a child who lost his fight against Cystic Fibrosis. This video, we hope, will show you some of what Mason will eventually endure. There is no cure for this progressive "invisible" disease that affects 30,000 children and young adults in the U.S. I say that because although Mason may look healthy on the outside, he is NOT and will never be unless a cure is found. There is some very exciting news in the past few months about 2 drugs that are in clinical trials which are showing some unprecedented results! Results that bring even more hope to the reality of a cure. Sorry to say but these 2 drugs will not help Mason, but there is hope that once these drugs are finalized they will spur some others that will help Mason.
We will be walking in the Great Strides Walk at the Milwaukee Zoo on May 15th. All money raised goes to the Cystic Fibrosis Foundation. There is no governmental money given to help fund reasearch, so every 90 cents of a dollar donated to the CFF goes toward research. With that we hope that you will find it in your heart and pocketbook to donate any amount of money you could to help find a cure for Mason. Please click on the link below or on the "Great Strides" button on the upper right hand side of this page. Thanks again for all your support in our family's fight against Cystic Fibrosis.
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