A new doc in town

So we did it. We have been thinking about it for a few months, well more than a few months. We switched pulmonologists. It was a hard decision but the right decisions are not always easy. Our new doc is more inline with how we want to treat and fight this CF battle.

We had an appointment on the 14th of November and that is when we decided to make the switch. Mason is standing tall at 31.1 inches (56%) and tipping the scales at 22 pounds 14 oz (29%). His length to weight is at 41%! This is the second closest we have ever gotten to the 50th%! Keep those calories coming! His throat culture did come back with normal flora and Staph. He will always culture staph since he is colonized with it.

Dr. Q really explained some things to us that we thought we had a handle on before but understand it much better now. One thing that was hard to hear is that she was able to see some changes in his lungs that are CF related...in other words, she already sees some lung damage. She did give us hope to turn this around. I guess I will take it since she has only lost one patient in 20 years.

So what are we going to do? We have an Infant PFT (click here for video) scheduled on Dec 20th with a chest x-ray before. This will give us a better idea what Mason's lung function is. We also started another medication called Hyper-tonic Saline. Basically super salty water for Mason to breath in to thin th mucus and help him cough it out.