Cystic Fibrosis is a chronic life shortening disease that is relentless. There is no break for Mason or us from this disease. We spend a lot of time each day fighting this uphill fight. There are many components to fighting: inhalers, nebulizers, pills, IV's, blood draws, weight checks, specially prepared food, multiple doctor appointments, tests, and so much more. Please watch.
I don't apologize for the many posts "showing" this disease. It is what Mason and 70,000 others in the world fight to breathe on a daily basis. It is not for pity or attention. It is for awareness. It is for the hope for a cure. It is for my son. So that my son will be able to grow old without having to worry about dying before the median life expectancy of 37.
3 comments:
Please google 'van Goor s1251n vx770'
VX 770 will also work on S1251N. My son has the same mutation. You can email me at samaruba@yahoo.com
this is the address for the abstract :
http://nacfcdl.cff.org/Abstracts%20and%20Posters/10_Van%20Goor_Fredrick.pdf
Happy New Year!
Hugs, Sam
Sarah, did you read my comments? Please email me, I have fantastic news for you!
Hug, Sam
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